Get involved in NHS Research in Cornwall

There are many ways people get involved with NHS research in Cornwall;

  1. A healthcare professional may approach you about taking part in a relevant study.
  2. We may advertise for people with or without a specific condition, usually on posters in GP surgeries and hospitals.
  3. Search by condition on a national database for clinical trial
  4. You can also register and choose how you wish to get involved. You could receive our newsletter, hear about local events, share your views on patient documents or work with our research teams on what is best for patients. Register here Register here.
    • Any information we collect about you will be confidential.
    • All information will be held securely on Royal Cornwall Hospital computer servers and only be accessible by NHS Patient & Public Engagement Representative staff.
    • It won’t be shared with external organisations.

Deciding whether to take part in clinical research

  • We will review the research set of eligibility criteria that participants must meet, we will give you information about the research and time to consider whether you want to take part.
  • You’ll receive an information sheet about the research which will contain the contact details of the research study team so that you can speak to them about any part of the study.
  • So that you can decide whether or not to take part, we will make sure you are fully aware of all study procedures and any changes to your standard care or treatment. We will also explain any risks or known potential side effects.
  • You do not have to take part and you are free to withdraw at any stage, even after the study has started. Your standard treatment will not be affected if you decide not to take part at any stage.
  • For further information and frequently asked questions please visit

Feedback

We are committed to improving the experience for research participants and often conduct participant experience surveys to gain feedback and help us to improve our services.

Patient Support Groups

If you are involved in a patient support group and would like us to come along and give a presentation about research or be available to give information to attendees please contact Amanda Datson via email on a.datson@nhs.net.

For further information and frequently asked questions please visit

RCHT Youth Voice

Are you a young person interested in getting your voice heard on questions and decisions relating to the NHS and Research?

Are you looking to go into a career in the NHS and would like to enhance your CV or get involved in healthcare?

Have you been a patient and would like to feedback your experiences, have your voice heard on topics important to you and get involved in projects relevant to health or research?

Our team has been consulted on potential social media research projects, become volunteers in the hospital, linked to national projects, are currently reviewing patient feedback questionnaires to ensure they targeting all age ranges AND much more!

INTERESTED? PLEASE GET IN TOUCH FOR MORE INFORMATION AND MEETING DATES
EMAIL: rcht.youthsteeringgroup@nhs.net

PATIENT STORIES
News / ResearchPatientNews

Clinical Research Study

Published: August 22, 2017

Categories: News / ResearchPatientNews

Teenager Ryan Fryer has been part of a drug-based clinical research study for the past three years as part of his treatment for a painful kidney condition, Nephrotic Syndrome

News / ResearchPatientNews

Cornwall respiratory patient champions research legacy

Published: May 18, 2017

Categories: News / ResearchPatientNews

Ann Bennett of Cornwall hopes her commitment to taking part in research into the treatment of a chronic lung condition will be her legacy for future patients.

News / ResearchPatientNews

Patient says she felt deeply honoured to be asked to take part in a clinical drug trial when she was being treated in Cornwall for breast cancer

Published: May 14, 2017

Categories: News / ResearchPatientNews

The Royal Cornwall Hospital patient said she felt valued and privileged when she was given the opportunity to participate in a research study alongside her treatment.